Care for the Caregivers Relief Program
Ready to find out more?
Dementia touches every corner of the Earth without discrimination.
Wives, husbands, sons, daughters, grandchildren etc. become caregivers overnight; without hesitation and full of love. They stay by the side of their loved one as they watch their life partner slowly slip away.
But there is an UNMET NEED. Being a live-in caregiver creates emotional, physical and financial stress. It is our goal to point the way and offer a helping hand to these families during what is likely the most difficult time in their life.
The Care for the Caregivers (CFTC) Relief Program offers a one-time grant and resource package to these unsung heroes.
In 2021, FTTF is excited to announce the pilot stage of the grant program is underway and helping families! While we refine and make this program the best it can be for the caregivers, we are accepting nominations with medical professional endorsement only. If you know a live in caregiver in need of support and relief, please contact us here for more information.
Links to external support communities, information and checklists
Here at FTTF, we hope to help facilitate connections and help caregivers and families find those experts out there in order to
- Prepare for caregiving
- Help get through the day to day
- Connect with other caregivers/ families going through the same
- Introduce you to some experts dedicated and committed to supporting the dementia community.
Below is not meant to be an all-inclusive list or take the place of medical advice. Caregiving can be overwhelming and it meant provide a few resources to get you started.
(copy and paste the below key words or similar into Facebook search bar):
- Dementia: The Journey Ahead
- Caregiver's Journal to Alzheimer's
- Dementia Caregivers Support Group
- Younger onset Dementia
And of course, join the FTTF Family and our Facebook page at For Their Thoughts Foundation
Disease Specific and Caregiver Resources:
Note: Links/URLs are great when they work, a huge annoyance when they don’t. They may update faster than we can catch them. To help keep up, in addition to the link, we’ve included the description of the location of the information to assist with good old fashioned web searching.
General information on dementia
- Mayo Clinic - https://www.mayoclinic.org/diseases-conditions/dementia/symptoms-causes/syc-20352013
- UCSF Memory Care and Aging - https://memory.ucsf.edu/
- Research and clinical trial information: https://Clinicaltrials.gov
Home Caregiving Resources
- Caregiving Support: Family Caregiver Alliance (FCA): https://www.caregiver.org/ (Tip: go to their "navigator" to find information for your geographical area)
- Elder Care Resource Center: www.agis.com
- CHECKLISTS: "Anticipate, rather than react" Sometimes a checklist to get organized, affairs in order, prep to see a lawyer, doctor, etc. is helpful. We recommend to make a portfolio to reach back to. AGIS provides several downloadable checklist. http://www.agis.com/Eldercare-Checklist/
- Mayo Clinic, Vascular Dementia
- Helpguide Nonprofit for Vascular Dementia
- A Patient's Guide to Vascular Dementia (PDF)
- Frontotemporal dementia | The Bluefield Project to Cure FTD
- Memory and Aging Center, UCSF, FTD
- The Associations of Frontotemporal Degeneration (AFTD)
- FTD HOTLINE: HelpLine at 866-507-7222
Parkinson's Disease Dementia
- Memory and Aging Center, UCSF, Parkinson’s Disease
- Parkinson’s Foundation
- UCSF's Patient’s Guide to PD (PDF)
- The Parkinson’s Helpline: The Helpline is available at (800) 4PD-INFO (473-4636) or firstname.lastname@example.org
**These are all merely suggestions - pick and choose what resources are best for you!
For the family caregivers: The Unsung Heroes
Dementia : A Practical Guide for in-Home Caregivers: the Journey Ahead by Ann Zultner and Susan Kiser Scarff
WHERE to find it: You can find this book on Amazon and Thrift Books
WHY we like it: This book is real. It will make you laugh. It will make you cry. It will help you feel less overwhelmed.